Caroline Wilkie is a nocturnal home hemo dialysis patient who is heavily involved in volunteer work with the National Kidney Foundation as well as other organizations serving kidney patients. She writes a quarterly newsletter and runs a support group for home patients in her dialysis clinic as well as serving as the patient advocate. She volunteers at the local chapter of the NKF in her hometown of Charlotte, North Carolina doing things such as assisting in planning fundraising events, procuring donations, and assisting with office work.
She also works with the NKF PEERS program which is a telephone based peer support program that helps people adjust to living with chronic kidney disease, kidney failure, or a kidney transplant. Caroline is also a member of the National Kidney Foundation’s Kidney Advocacy Committee which is a group of 80+ patients from 45 states who are personally affected by kidney disease. The KAC use their experience to advice government agencies, research organizations and policy and health organizations on kidney disease. She is also a member of the Kidney Health Initiative’s Patient and Family Partnership Council. She is also currently serving on a KHI steering committee workgroup project entitled: Prioritizing Symptoms of ESRD Patients for Developing Therapeutic Interventions.