ASN's Mission

ASN leads the fight to prevent, treat, and cure kidney diseases throughout the world by educating health professionals and scientists, advancing research and innovation, communicating new knowledge, and advocating for the highest quality care for patients.

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1401 H St, NW, Ste 900, Washington, DC 20005


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Kidney Week

Clinical Practice Session

Putting the Patient in Patient-Oriented Clinical Trials

November 09, 2019 | 02:00 PM - 04:00 PM

Location: 150, Walter E. Washington Convention Center

Session Description

Clinical trials for kidney diseases are becoming increasingly abundant as new targeted therapies are being developed. In addition to traditional outcomes like proteinuria and kidney function as a measure of a trial’s success, there is increasing awareness that patient preferences need to be considered. There is also concern about how to engage patients and encourage medication adherence. This session focuses on patient-centered issues that are critical to clinical trials in nephrology and how to establish and implement patient-centered outcomes into the clinical trial arena.

ASN thanks the KHI Patient and Family Partnership Council for assistance with this session.

Learning Objective(s)

  • Describe reasons for medical nonadherence, ways to assess nonadherence, and ways to minimize nonadherence
  • Develop a process to engage patients in clinical trials of experimental therapeutics
  • Explain how patient-relevant outcomes are being developed and how to use them in clinical trials

Learning Pathway(s)

  • Other


  • Richard A. Lafayette, MD
  • Allison Tong, PhD, MPH


  • Designing Clinical Trials: Maximizing the Use of Patient Reported Outcomes
    02:00 PM - 02:30 PM
    Amanda Grandinetti, MPH
  • Approving New Therapies: How Patients Are Moving the Needle in Regulatory Decisions
    02:30 PM - 03:00 PM
    Paul T. Conway
  • Medication Adherence: Roadblocks, Assessment, and Solutions
    03:00 PM - 03:30 PM
    Bethany J. Foster, MD 
  • Engaging Patients in Therapeutic Drug Development
    03:30 PM - 04:00 PM
    John Bridges, PhD