Kidney Health Advocacy
A Message From ASN President Prabir Roy-Chaudhury, MD, PhD, FASN
Dear Colleague:
I am pleased to share this month's advocacy updates from the American Society of Nephrology (ASN). Despite the federal government's shutdown, ASN continued to advance kidney health by bolstering kidney research in at least five ways:
1. Partnered with Satellite Healthcare to Endow the Norman and Sandra Coplon Research Scholar Grant
Established with a $2 million donation from Satellite Healthcare and a matching $2 million donation from ASN, the Norman and Sandra Coplon Research Scholar Grant will be awarded annually by KidneyCure (the ASN Foundation) beginning in 2026. Named for the founder of Satellite Healthcare and his wife, the Transition to Independence Grant honors Norman and Sandra Coplon's commitment to improving the quality of life for people living with kidney diseases. KidneyCure is dedicated to keeping talented investigators in the field of nephrology and on track to making groundbreaking discoveries. The foundation distributes approximately $3 million annually to clinicians, researchers, fellows, and educators.
2. Launched the KidneyCure Bridge Grants Program
To help sustain researchers affected by federal funding cuts and changes in payment policy by the National Institutes of Health (NIH), KidneyCure has committed up to $6 million in additional funding over three years. The KidneyCure Bridge Grant is a single payment of $100,000 to bridge NIH applicants to future NIH funding support who:
· Submitted as a contact principal investigator (PI) a kidney-focused proposal to a NIH R01 Research Project Funding Opportunity with deadlines between October 5, 2024, and June 1, 2025.
· Received an overall impact score ranked within the top 15th percentile.
· Were not awarded a grant.
3. Partnered on Americans for Medical Research, a National Non-Partisan Campaign
Coordinated with Research!America, Americans for Medical Research aims to activate key constituencies to contact their Congressional delegation in support of federally funded research. ASN members are invited to participate in the campaign by visiting the campaign's website and sharing how you have been impacted by NIH funding cuts or general budget uncertainty, and how your research illustrates why federal funding for medical and health research is crucial. To learn more and get involved, please visit www.americansformedicalresearch.org/sciencesocieties.
4. Released Transforming Kidney Health Research: A Research Agenda for the Future.
Under ASN's leadership, the Transforming Kidney Health Research initiative brought together the kidney community—including the American Association of Kidney Patients, American Kidney Fund, American Society of Pediatric Nephrology, and National Kidney Foundation—to examine how the nation can reimagine kidney research. The report calls for the federal government to provide $1.8 billion annually over the next decade for kidney research to develop scalable therapies and innovation, and details five interconnected priorities that, together, can transform the nation's approach to kidney health. Reflecting broad collaboration with federal agencies, research institutions, and nonprofit partners, the report provides a unified research agenda to help the United States achieve a bold vision: a future without kidney failure.
5. Supported International Medical Graduates (IMGs)
As the nephrology specialty relies heavily on IMGs, ASN has prioritized immigration advocacy to ensure access to kidney care and quality kidney research across the country. ASN commented on a proposed rule by the Department of Homeland Security (DHS) titled "Weighted Selection Process for Registrants and Petitioners Seeking to File Cap-Subject H-1B Petitions". ASN strongly urged DHS to withdraw the proposed rule implementing a weighted selection process for H-1B visas and to maintain the current process for H-1B visas.
I am also proud to share that following sustained advocacy from ASN—independently and in partnership with the National Kidney Foundation, the Partnership to Advance Cardiovascular Health, and the American Association of Nurse Practitioners—the Centers for Medicare & Medicaid Services (CMS) issued a final National Coverage Determination (NCD) on October 28, 2025, to provide Medicare coverage for renal denervation, a minimally invasive procedure to treat uncontrolled hypertension. The decision follows extensive clinical evidence demonstrating durable reductions in blood pressure and represents an important step toward expanding treatment options for patients struggling with high blood pressure.
Finally, I look forward to seeing you next week at ASN Kidney Week 2025 in Houston, TX. Continuing the theme of bolstering research to advance kidney health, I'm absolutely thrilled that the opening plenary session on Thursday, November 6, will—for the first time in history—include the results of two featured clinical trials:
· "Finerenone in CKD and Type 1 Diabetes."
· "ORIGIN 3: A Phase 3 Trial of Atacicept in IgAN."
If you haven't registered for the world's premier nephrology meeting, there's still time. Please visit https://www.asn-online.org/education/kidneyweek.
And as you prepare for ASN Kidney Week 2025, I encourage all members to participate in the policy-focused sessions and events offered throughout the meeting. I have selected out a few ASN Kidney Week 2025 sessions and events that provide important opportunities to engage directly with experts, learn about the latest developments in health policy, and strengthen ASN's collective voice on issues that affect the future of nephrology research, education, and patient care.
As always, I thank you for your commitment to the patients, research, and policies that define our field. To stay up to date on these and other advocacy efforts, please visit ASN's Kidney Health Advocacy page. Your involvement is critical to advancing kidney health through advocacy.
Sincerely,
Prabir Roy-Chaudhury, MD, PhD, FASN
President
Advocating for Transformative Change
ASN—both individually and as a member of healthcare, medical, and scientific coalitions—routinely engages Congress and the Trump Administration, advocating for policies to create transformative changes in kidney health. ASN relies on its Health Care Justice Committee, Policy and Advocacy Committee, Quality Committee, and Transplant Policy Committee when formulating, prioritizing, and accomplishing annual policy priorities. A summary of ASN's most recent advocacy efforts follows—including for fiscal year (FY) 2026 kidney health research—in reverse chronological order.
Kidney Health Advocacy Efforts
2025
October 29, 2025
ASN Supports the Sickle Cell Disease Comprehensive Care Act
ASN urged the House Energy and Commerce Subcommittee on Health to include the Sickle Cell Disease Comprehensive Care Act in an upcoming hearing or markup.
Read more »
October 29, 2025
October 27, 2025
ASN Supports Additional Federal Funding for Kidney Research
ASN urged Congressional Appropriators to provide no less than $47.2 billion for the National Institutes of Health and the Advanced Research Projects Agency for Health.
Read more »
October 23, 2025
ASN Comments on DHS H-1B Visa Proposed Rule
ASN urged DHS to reconsider implementing a weighted selection process for H-1B visas and to maintain the current process for H-1B visas.
Read more »
October 23, 2025
September 30, 2025
Dear Colleague Letter from ASN President Prabir Roy-Chaudhury
ASN President Prabir Roy-Chaudhury issues monthly Dear Colleague letter to ASN membership outlining several key initiatives to support the kidney community.
Read more »
September 29, 2025
ASN Urges DHS to Exempt IMGs from New H-1B Restrictions
ASN urges Secretary Noem to exempt international medical graduates working in nephrology from new H-1B restrictions, arguing that they are essential to caring for millions of Americans with kidney diseases.
Read more »
September 29, 2025
September 29, 2025
ASN Opposes Proposed Changes to Duration of Status for J-1 Visas
ASN strongly opposed a recent proposed rule from the Department of Homeland Security impacting duration of status for J-1 visas, arguing it would disrupt medical training, the physician pipeline, and patient care.
Read more »
September 25, 2025
ASN & AMA Urges Administration to Reconsider H-1B Proclamation
ASN and AMA call the Department of Homeland Security to exempt physicians from the Presidential Proclamation on H-1B policies.
Read more »
September 25, 2025
September 22, 2025
ASN Urges Congress to Support the FAIR model on F&A Costs
ASN calls for Congress to support the FAIR model and Joint Associations Group on Indirect Costs priorities, safeguard funding for research costs, prevent harmful caps, and ensure stability during the transition period.
Read more »
September 15, 2025
ASN Expresses Concern over NIH Article Processing Charges Policy
ASN urges NIH not to cap Article Processing Charges, arguing such limits would threaten the viability of medical society journals, and constrain academic freedom.
Read more »
September 15, 2025
September 12, 2025
ASN Comments on CY2026 Medicare Physician Fee Schedule (PFS) Rule
ASN voiced concern over proposed changes to practice expense methodology, an efficiency adjustment, and related payment policies.
Read more »
September 10, 2025
ASN Urges Congress to Extend Enhanced Advance Premium Tax Credits (APTCs)
ASN joined the American Medical Association in urging Congress to enact legislation to extend APTCs.
Read more »
September 10, 2025
September 4, 2025
ASN Submits Statement to the Senate Finance Committee's Hearing on The President's 2026 Health Care Agenda
In an official statement for the record for the Senate Finance Committee's hearing on The President's 2026 Health Care Agenda on September 4, ASN urged Congress to preserve confidence in and access to vaccines, sustain critical funding for scientific research, and strengthen data transparency and integrity.
Read more »
September 2, 2025
ASN Supports Cure Hepatits C Act
ASN urges Congress to pass S.1941 Cure Hepatitis C Act of 2025.
Read more »
September 2, 2025
August 31, 2025
Dear Colleague Letter from ASN President Prabir Roy-Chaudhury
ASN President Prabir Roy-Chaudhury issues monthly Dear Colleague letter to ASN membership outlining several key initiatives to support the kidney community.
Read more »
August 29, 2025
ASN Comments on CY2026 End Stage Renal Disease Prospective Payment System and Quality Incentive Program (ESRD PPS QIP) Proposed Rule
ASN's comments raised concerns about forecasting errors, urged reforms to support innovation in dialysis treatments, recommended creating a home dialysis ICH CAHPS equivalent, and proposed nutrition and patient well-being quality measures.
Read more »
August 29, 2025
August 20, 2025
ASN Joins Community in Urging CMS to Focus on FHIR-based dQMs
ASN joined a sign-on letter led by the American Medical Association (AMA) urging the Centers for Medicare and Medicaid Services (CMS) to focus on Fast Healthcare Interoperability (FHIR)-based digital Quality Measures (dQMs).
Read more »
August 18, 2025
ASN, NKF, and ANNA Urge CMS to Reinstate Collection of Race and Ethnicity Data via CMS-2728 Form
ASN, together with the National Kidney Foundation (NKF) and the American Nephrology Nurses Association (ANNA), sent a letter to the Centers for Medicare & Medicaid Services (CMS) urging the agency to reinstate race and ethnicity fields on Form CMS-2728, the End-Stage Renal Disease (ESRD) Medical Evidence Report.
Read more »
August 18, 2025
August 8, 2025
ASN Supports Successful Effort to Reinstate IV Iron Product Names
On August 8, the FDA granted an ASN-supported citizen petition from CSL Vifor to reverse the 2021 name changes to iron sucrose, ferric gluconate, and iron dextran products.
Read more »
August 1, 2025
ASN Opposes NIH Policy On Lump Sum Grant Payments
ASN urged NIH Director Dr. Bhattacharya to reverse a new policy limiting competing grants and shifting to lump-sum awards, warning it would harm kidney research and early-career scientists.
Read more »
August 1, 2025
July 31, 2025
Dear Colleague Letter from ASN President Prabir Roy-Chaudhury
ASN President Prabir Roy-Chaudhury issues monthly Dear Colleague letter to ASN membership outlining several key initiatives to support the kidney community.
Read more »
July 31, 2025
ASN Urges HRSA to Strengthen Pre-Waitlisting Data Collection for Transplant Access
ASN submitted comments to HRSA strongly supporting the collection of pre-waitlisting referral and evaluation data through the OPTN.
Read more »
July 31, 2025
July 22, 2025
ASN Supports the Reintroduction of the Living Donor Protection Act, the Living Donor FMLA Protection Act, and the Senate companion bill S.1552
H.R. 4583, The Living Donor Protection Act, and H.R. 4582, the Living Donor FMLA Protection Act, have been reintroduced in the House. Along with the Senate companion bill S.1552; the Living Donor Protection Act of 2025 which was introduced earlier this session, the House's two-bill package aims to strengthen protections for living donors.
Read more »
July 15, 2025
ASN Comments on Front-of-Package Labeling
ASN expresses concern to the FDA over the continued omission of phosphorus content from nutrition labeling.
Read more »
July 15, 2025
July 9, 2025
ASN Defends USPSTF Independence
ASN calls on Congress to protect the integrity and independence of the U.S. Preventive Services Task Force, emphasizing its role in ensuring access to trusted, evidence-based preventive care.
Read more »
June 30, 2025
Dear Colleague Letter from ASN President Prabir Roy-Chaudhury
ASN President Prabir Roy-Chaudhury issues monthly Dear Colleague letter to ASN membership outlining several key initiatives to support the kidney community.
Read more »
June 30, 2025
June 27, 2025
ASN Urges UN Member States to Prioritize Kidney Health
ASN and the global kidney community urge UN Member States to include kidney disease in the Political Declaration of the 2025 UN High-Level Meeting on NCDs and Mental Health.
Read more »
June 25, 2025
ASN Reaffirms Support for Vaccination
ASN reaffirms its support for influenza, RSV, and COVID‑19 vaccination—especially in light of the severe 2024–25 respiratory virus season and an anticipated surge this fall—to reduce preventable illness, hospitalization, and death, while urging insurers and public health partners to guarantee access without cost-sharing.
Read more »
June 25, 2025
June 18, 2025
ASN Urges Secretary Kennedy to Reinstate ACIP Members
ASN urges Secretary Kennedy to reinstate members of the Advisory Committee on Immunization Practices (ACIP), emphasizing that their independent, expert-led review is essential for maintaining public trust, vaccine coverage, and disease protection.
Read more »
June 16, 2025
ASN Comments on Improving Digital Health
ASN responds to RFI issued by CMS and ASTP/ONC Health IT on improving digital health products, data interoperability, and infrastructure for Medicare beneficiaries with kidney diseases.
Read more »
June 16, 2025
June 16, 2025
PQM Spring 2025 E&M cycle
ASN submits comments in response to Battelle's Partnership for Quality Measurement (PQM) Spring 2025 Measures Spring 2025 Endorsement and Maintenance (E&M) cycle.
Read more »
June 13, 2025
ASN Urges Reversal of Visa Interview Pause for IMGs
ASN urges Secretary Rubio to reverse the pause on visa interviews for international medical graduates, warning that this policy threatens patient care and the physician workforce.
Read more »
June 13, 2025
June 10, 2025
ASN Advocacy on FY25 and FY26 NIH Funding
ASN advocates that Congress ensure that the legally appropriated FY 2025 NIH funds are released, and to block proposed FY 2026 deep cuts and restructuring.
Read more »
June 5, 2025
ASN Opposes Proposed NIH Cuts
ASN urges Congress to reject the President's budget proposed 38% cut to NIH for FY 2026 and instead enact bold investment in NIH.
Read more »
June 5, 2025
May 31, 2025
Dear Colleague Letter from ASN President Prabir Roy-Chaudhury
ASN President Prabir Roy-Chaudhury issues monthly Dear Colleague letter to ASN membership outlining several key initiatives to support the kidney community.
Read more »
May 22, 2025
National Institutes of Health and NIDDK
ASN partners with ASPN and NKF to lead the kidney community in urging Congress to provide $51.3 billion for NIH and $2.5 billion for NIDDK in FY 2026.
Read more »
May 22, 2025
May 22, 2025
KidneyX
ASN partners with ASPN and NKF to lead the kidney community in advocating for Congress to provide $25 million for KidneyX in FY 2026.
Read more »
May 12, 2025
Restore Protections for Dialysis Patients Act
ASN urges Congress to support the Restore Protections for Dialysis Patients Act to restore long-standing health insurance protections for individuals with kidney failure.
Read more »
May 12, 2025
May 8, 2025
Agency Reduction-in-Force and Reorganization Plans
ASN calls for increased Congressional oversight in Agency Reduction-in-Force and reorganization plans.
Read more »
April 30, 2025
Dear Colleague Letter from ASN President Prabir Roy-Chaudhury
ASN President Prabir Roy-Chaudhury issues monthly Dear Colleague letter to ASN membership outlining several key initiatives to support the kidney community.
Read more »
April 30, 2025
April 25, 2025
Department of Health and Human Services (HHS)
ASN advocates that Congress reject proposed budget cuts across HHS agencies and centers.
Read more »
April 10, 2025
Department of Veterans Affairs (VA)
ASN urges lawmakers to provide $1.2 billion for VA research reflecting the critical role VA research plays in advancing veterans' health.
Read more »
April 10, 2025
April 7, 2025
National Institutes of Health (NIH)
ASN advocates that NIH receive $51.3 billion in FY 2026, a 9% increase over FY 2025 funding levels.
Read more »
April 1, 2025
World Health Organization (WHO)
ASN urges UN Member States to vote in favor of a resolution to make kidney health a global priority.
Read more »
April 1, 2025
March 31, 2025
Dear Colleague Letter from ASN President Prabir Roy-Chaudhury
ASN President Prabir Roy-Chaudhury issues monthly Dear Colleague letter to ASN membership outlining several key initiatives to support the kidney community.
Read more »
March 31, 2025
National Institutes of Health (NIH)
ASN emphasizes NIH role in kidney disease research to recently confirmed NIH Director Bhattacharya.
Read more »
March 31, 2025
March 25, 2025
ASN Alert
Now and for the foreseeable future, ASN advises non-citizen medical professionals—including permanent residents—postpone any non-essential travel outside the United States.
Read more »
March 24, 2025
CMS Grants ASN's and AMA's Request to Reopen Applications for MIPS Extension of EUC Hardship Exception
Following a request from ASN and the American Medical Association, the Centers for Medicare and Medicaid (CMS) reopened applications for the Merit-based Incentive Payment System (MIPS) Extreme and Uncontrollable (EUC) hardship for performance year 2024 due to the intravenous (IV) fluid shortage caused by Hurricane Helene last fall.
Read more »
March 24, 2025
March 20, 2025
Health Resources and Services Administration (HRSA) Health Systems Organ Transplantation
ASN and more than 30 members of the kidney community urge Congress to include $67 million for the Health Resources and Services Administration (HRSA) Health Systems Organ Transplantation program in the Fiscal Year (FY) 2026 Labor, Health and Human Services, Education, and Related Agencies (LHHS) Appropriations bill.
Read more »
March 7, 2025
Supporting Clinical Research
CMSS, the national organization of specialty societies of which ASN is a member, continues to denounce governmental interference into the practice of medicine that undermines the patient-physician relationship.
Read more »
March 7, 2025
March 3, 2025
Agency for Healthcare Research and Quality
ASN calls on Congress to fully fund AHRQ at $500 million for FY 2026.
Read more »
February 28, 2025
Dear Colleague Letter from ASN President Prabir Roy-Chaudhury
ASN President Prabir Roy-Chaudhury issues Dear Colleague letter to ASN membership outlining several key initiatives to support the kidney community.
Read more »
February 28, 2025
February 25, 2025
National Institutes of Health (NIH)
ASN urges Congress to provide at least $1.77 billion increase for NIH in the FY 2025 appropriations package and preserve existing protections against cuts to reimbursement for NIH grantee Facilities and Administrative costs.
Read more »
February 5, 2025
Expansion of Oral Health Coverage for DKD Patients
After CMS expanded oral health coverage for kidney failure patients in last year's ESRD Prospective Payment System (PPS) and Quality Incentive Program (QIP) final rule, ASN urges CMS extend this coverage to patients with diabetic kidney disease.
Read more »
February 5, 2025
February 4, 2025
CMS Medicare Advantage Policy and Technical Changes Proposed Rule
ASN submits comments in response to the public comment period for CMS-4208-P: Contract Year 2026 Policy and Technical Changes to the Medicare Advantage Program, Medicare Prescription Drug Benefit Program, Medicare Cost Plan Program, and Programs of All-Inclusive Care for the Elderly.
Read more »
February 3, 2025
National Institutes of Health (NIH)
ASN advocates Congress to increase federal investment in NIH supported research and provide at least $48 billion for NIH in FY 2025.
Read more »
February 3, 2025
January 28, 2025
ASN President Highlights Advocacy Commitment
ASN President Prabir Roy-Chaudhury, MD, PhD, FASN highlights ASN's commitment to advocating for policies that create transformative changes in kidney health.
Read more »
January 15, 2025
OSHA Heat Injury and Prevention Standard
ASN urges the Occupational Safety and Health Administration finalize and implement its new heat injury and prevention standard, due to the link between occupational heat exposure and the development of serious medical issues including to the kidney.
Read more »
January 15, 2025
January 14, 2025
Congressional Hill Day
ASN develops its annual policy priorities to advocate for during its March 2025 Congressional Hill Day.
Read more »
January 3, 2025
Improving HHS Pre-waitlisting Data Collection
ASN supports HHS's proposal to collect data on "black box" between referral for kidney transplant and waitlisting but urges crucial steps to minimize burden on transplant centers.
Read more »
January 3, 2025
2024
December 20, 2024
PQM Fall Measures Under Consideration
ASN submits comments in response to Battelle's Partnership for Quality Measurement (PQM) Fall 2024 Measures Under Consideration Cycle.
Read more »
December 2, 2024
NIH and NIDDK
ASN requests Congress complete the FY 2025 Labor-HHS funding bill and provide $48 billion in NIH funding and $2.31 billion for NIDDK funding.
Read more »
December 2, 2024
November 18, 2024
NIH and Advanced Research Projects Agency for Health
ASN urges Congress to provide no less than $48 billion for base funding for the NIH, as well as funding for the Advanced Research Projects Agency for Health, in the FY 2025 Labor-HHS spending bill by the end of the calendar year.
Read more »
September 6, 2024
NIH and NIDDK
ASN asks Congress to include at least $48 billion in funding to the NIH and a proportional increase to NIDDK in FY 2025.
Read more »
September 6, 2024
Additional Advocacy Resources
February 2025: How Trump's Medical Research Cuts Would Hit Colleges and Hospitals in Every State (New York Times).
Council on Governmental Relations Facilities and Administrative Cost Reimbursement Advocacy Materials.
Association of American Medical Colleges Advocacy Resources on Facilities & Administrative (F&A) Costs:
- A fact sheet outlining key messages and a frequently asked questions overview.
- A comparison of foundations' support for F&A to government support.
- An infographic illustrating what types of expenses are and are not supported by F&A reimbursement.
January 2025: Research!America releases results of national survey showing Americans want President and Congress to assign higher priority to medical progress.