ASN's Mission

To create a world without kidney diseases, the ASN Alliance for Kidney Health elevates care by educating and informing, driving breakthroughs and innovation, and advocating for policies that create transformative changes in kidney medicine throughout the world.

learn more

Contact ASN

1401 H St, NW, Ste 900, Washington, DC 20005

email@asn-online.org

202-640-4660

The Latest on X

Kidney Week

Abstract: SA-PO0633

Urine-Derived Renal Epithelial Cells: A Noninvasive Tool for Diagnosing and Monitoring Kidney Involvement in Fabry Disease

Session Information

Category: Genetic Diseases of the Kidneys

  • 1201 Genetic Diseases of the Kidneys: Monogenic Kidney Diseases

Authors

  • Sayer, John Andrew, Newcastle University, Newcastle upon Tyne, England, United Kingdom
  • Sentell, Zachary T., Newcastle University, Newcastle upon Tyne, England, United Kingdom
  • Dhondurao Sudhindar, Praveen, Newcastle University, Newcastle upon Tyne, England, United Kingdom
  • Arcila Galvis, Juliana Estefania, Newcastle University, Newcastle upon Tyne, England, United Kingdom
Background

Fabry Disease is an X-linked lysosomal storage disorder caused by α-galactosidase A deficiency, leading to glycosphingolipid accumulation and progressive organ damage. Kidney involvement is a major complication, yet diagnosis often requires invasive kidney biopsy, and follow-up relies on indirect biomarkers or imaging, which lack cellular and molecular resolution. Here, we present human urine-derived renal epithelial cells (hURECs) as a minimally invasive alternative for phenotyping renal Fabry disease and monitoring treatment response

Methods

Using hURECs from a newly diagnosed male Fabry disease patient, transmission electron microscopy (TEM) revealed lysosomal inclusions diagnostic of renal Fabry pathology, consistent with kidney biopsy findings. Bulk RNA sequencing (RNAseq) identified a transcriptomic disease signature including dysregulated pathways involved in lipid metabolism homeostasis, ion transport, endoplasmic reticulum stress response, and collagen processing.

Results

Bulk RNA sequencing (RNAseq) identified a transcriptomic disease signature including dysregulated pathways involved in lipid metabolism homeostasis, ion transport, endoplasmic reticulum stress response, and collagen processing. Following systemic treatment of the patient with chaperone therapy, partial amelioration of the hUREC transcriptomic signature was observed during the first few months. However, by nine months, the signature began reverting towards baseline, correlating with continued kidney function decline. This prompted a transition to enzyme replacement therapy (ERT), with early evaluations showing transcriptomic stabilization.

Conclusion

Our findings demonstrate that hURECs replicate key structural and molecular markers of renal Fabry disease and offer a non-invasive platform for longitudinal assessment of treatment response. TEM of hURECs provides a diagnostic alternative to biopsy, while RNAseq-based transcriptomic profiling offers a sensitive and dynamic view of molecular changes, including key dysregulated pathways. This dual utility positions hURECs as a novel tool for improving the diagnosis, monitoring, and personalized management of renal involvement in Fabry disease.

Funding

  • Commercial Support – Sanofi

Digital Object Identifier (DOI)