Abstract: FR-PO0037
Patient and Caregiver Perspectives on Cardiovascular-Related Unmet Needs in Patients with Kidney Failure: A Social Media Listening Project
Session Information
- Artificial Intelligence and Digital Health at the Bedside
November 07, 2025 | Location: Exhibit Hall, Convention Center
Abstract Time: 10:00 AM - 12:00 PM
Category: Artificial Intelligence, Digital Health, and Data Science
- 300 Artificial Intelligence, Digital Health, and Data Science
Authors
- Kalantar-Zadeh, Kamyar, Division of Nephrology and Hypertension and Transplantation, Harbor-UCLA Medical Center and the Lundquist Institute, Torrance, California, United States
- Braverman, Julia, CSL, King of Prussia, Pennsylvania, United States
- Queen, Viji, CapeStart Inc, Cambridge, Massachusetts, United States
- Maruthu Pandiyan, Gayathri, CapeStart Inc, Cambridge, Massachusetts, United States
- Ellis, Darcy, CSL, King of Prussia, Pennsylvania, United States
- Shaunik, Alka, CSL, King of Prussia, Pennsylvania, United States
Background
Cardiovascular disease (CVD) is a major complication in patients (pts) with kidney failure. US reports suggest that approximately 75% of pts with kidney failure receiving maintenance dialysis have CVD, which is the leading cause of death in this population worldwide. In this social media listening project, we aimed to gather pt and caregiver perspectives on the most common cardiovascular (CV)-related unmet needs in pts with kidney failure, with a particular focus on those receiving maintenance dialysis.
Methods
A targeted, keyword-based search strategy was used to source public posts on CVD and CV risk factors in pts with kidney failure from social media platforms and pt communities between November 2022 and February 2025. Posts were systematically screened and tagged to remove duplicates and classify the content by relevance to CVD and CV risk factors. All relevant posts were translated into English, analyzed, and quantified.
Results
In total, 252 posts on CVD and 828 on CV risk factors were identified during this period. Pts were the primary voices for both CVD- and CV risk factor-related posts (64.7% [163/252] and 81.5% [675/828], respectively), followed by family and friends (33.7% [85/252] and 17.4% [144/828], respectively). Of the CVD-related posts, 75 focused on pts’ unmet needs. The most frequently quoted unmet needs across these posts were pt education (58.7%) and treatment needs (42.7%). External engagement (i.e., likes, shares, and reactions) was also highest for posts on these topics. A similar trend was observed for the 175 posts on CV risk factor-related unmet needs. Posts most frequently highlighted educational (72.6%) and treatment needs (29.7%), with engagement levels also highest for posts on these topics. Other unmet needs reported across both CVD- and CV risk factor-related posts were health service-related, diagnostic, and financial.
Conclusion
A high unmet need for improved education on CVD and CV risk factors is noted in pts with kidney failure. Pts also perceive a high unmet need for therapies that can effectively manage these conditions, as well as improved access to treatments. Educational initiatives that aim to enhance pt knowledge on CVD and CV risk factors in these pts may improve health outcomes and pt experiences.
Funding
- Commercial Support – CSL Vifor