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Kidney Week

Abstract: TH-PO004

Online Patient Education on Polycystic Kidney Disease Prompts Real Life Changes

Session Information

  • Educational Research
    November 03, 2022 | Location: Exhibit Hall, Orange County Convention Center‚ West Building
    Abstract Time: 10:00 AM - 12:00 PM

Category: Educational Research

  • 900 Educational Research


  • Larkin, Amy, Medscape LLC, New York, New York, United States
  • Smith, Steven, Medscape LLC, New York, New York, United States

We sought to measure the impact of online education for patients on knowledge and confidence as well as on prompting change in daily life.


The educational activity was available online, and comprised of text and integrated visuals as well as a patient video. Demographic questions were asked prior to starting the education. A knowledge question was asked both before and after the activity to assess learning gains, as well as intent to change and confidence questions at the end. Absolute improvements were calculated for pre/post questions. The activity launched December 8, 2021, and preliminary data collected through April 26, 2022.


To date, 19,600 learners have participated in the patient/caregiver activity, “Polycystic Kidney Disease: What Do You Need to Know?”
Completers of all questions (included in outcomes analysis): 4,765
Demographics: 70% female; 67% white, non-Hispanic; 63% over the age of 54; 19% have polycystic kidney disease, 13% are caregivers or family of someone with polycystic kidney disease, 69% were interested in learning more about polycystic kidney disease
Knowledge Changes: 12% increase in learners who recognized that sticking to your PKD treatment is important even if you’re feeling ok (55% pre, 67% post)
Intent-to-act: 74% plan to talk to their HCP about ways to manage their PKD
Confidence: 78% reported being confident in talking to my doctor or healthcare provider about PKD and what it means for me


The metrics and outcomes gathered in this assessment are a strong indicator that these patient-focused online educational activities improved knowledge and confidence and prompted intent to act by patients related to polycystic kidney disease.