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Abstract: FR-PO894

Stakeholder Perspectives on Engaging Latinx Patients in Kidney-Related Research

Session Information

Category: Diversity and Equity in Kidney Health

  • 800 Diversity and Equity in Kidney Health


  • Alvarado, Flor, Tulane University School of Medicine, New Orleans, Louisiana, United States
  • Delgado, Cynthia, San Francisco VA Health Care System, San Francisco, California, United States
  • Nicholas, Susanne B., University of California Los Angeles David Geffen School of Medicine, Los Angeles, California, United States
  • Tong, Allison, The University of Sydney School of Public Health, Sydney, New South Wales, Australia
  • Cervantes, Lilia, University of Colorado - Anschutz Medical Campus, Aurora, Colorado, United States

Latinx patients are disproportionally burdened by kidney disease compared to non-Latinx White patients and are underrepresented in kidney-related research. We aimed to describe stakeholders’ perspectives on challenges related to engaging Latinx patients in kidney-related research.


We conducted a thematic analysis of qualitative data from two online moderated discussions and an interactive online survey using open text responses among participants (i.e. stakeholders) with personal and/or professional experience with Latinx patients with kidney disease and their families/caregivers.


Among eight stakeholders, there were 3 physicians, 1 nurse, 1 patient with kidney disease who received a kidney transplant, 1 policymaker, 1 PhD-trained disparities researcher, and 1 executive director of a non-profit health organization. The majority of themes (and subthemes) reflected barriers to engagement and recruitment: lack of personal relevance (inability to relate to research staff, perceived low importance of clinical trials, limited opportunities to participate; ambiguity of benefit to self and family); fear and vulnerability (immigration concerns, stigma with seeking care, skepticism of Western medicine); financial and logistical barriers (out-of-pocket costs, transportation issues); and distrust and asymmetry of power (related to limited English proficiency or health literacy, and provider bias). The last theme was on stimulating interest and establishing trust in the research process. (Figure)


To overcome barriers to engagement in kidney-related research and establish trust among potential Latinx research participants, investigators can employ culturally responsive and community-based strategies. These strategies can help identify local health priorities, enhance research recruitment and retention strategies, and establish partnerships that continue to elevate research endeavors aiming to enhance the health of Latinx individuals with kidney disease.

Figure. Thematic schema


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