Abstract: TH-PO814
Strategies to Improve Self-Management in CKD From the Patient Perspective
Session Information
- Health Maintenance, Nutrition, Metabolism
November 03, 2022 | Location: Exhibit Hall, Orange County Convention Center‚ West Building
Abstract Time: 10:00 AM - 12:00 PM
Category: Health Maintenance‚ Nutrition‚ and Metabolism
- 1400 Health Maintenance‚ Nutrition‚ and Metabolism
Authors
- Schrauben, Sarah J., University of Pennsylvania Perelman School of Medicine, Philadelphia, Pennsylvania, United States
- Rivera, Eleanor, University of Illinois Chicago, Chicago, Illinois, United States
- Park, Diane, University of Pennsylvania Perelman School of Medicine, Philadelphia, Pennsylvania, United States
- Amaral, Sandra, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States
- Feldman, Harold I., University of Pennsylvania Perelman School of Medicine, Philadelphia, Pennsylvania, United States
- Dember, Laura M., University of Pennsylvania Perelman School of Medicine, Philadelphia, Pennsylvania, United States
- Barg, Frances K., University of Pennsylvania Perelman School of Medicine, Philadelphia, Pennsylvania, United States
Background
Self-management is integral for the treatment of chronic kidney disease (CKD). Despite low adherence to self-management behaviors, few studies provide insight into ways to improve self-management. This current study aimed to describe factors needed to self-manage CKD and suggestions to improve self-management from the patient perspective.
Methods
Semi-structured interviews were conducted with 30 participants who were purposively recruited for representation by CKD stage (3 or 4), age (<65, ≥65 yrs), race (white, non-white), and sex. Interviews focused on patient experiences with CKD and its management, and to identify resources necessary to manage CKD. They were recorded, transcribed, and entered into NVivo 12.0 for coding and analysis. Transcripts were coded inductively and analyzed thematically.
Results
Two themes described components necessary for self-management from the patient perspective. The first was "getting in the right mindset”, which included acceptance of the CKD diagnosis, being open-minded, and expecting lifestyle changes. The second theme was “supports of self-management”, which included educational resources, social/peer support, and a good patient-provider relationship. Almost all participants shared they wanted to be educated “on their level” about CKD. Participants shared that “having people who are in the same situation is very valuable”, especially for emotional support. Another shared that “you have to have open lines of communication with your doctor”. Participants also provided actionable suggestions for enhancing the supports of self-management, which included 1) creating a repository of trustworthy educational resources in laymen’s terms, 2) establishing peer support groups, and 3) encouraging shared-decision making by providing example questions to patients that are important to ask doctors.
Conclusion
Participants with CKD in this study endorsed several key themes to promote their self-management, across different levels of the healthcare model. At an individual level, they endorsed the need to accept their disease and be ready to change, at a community-level, they emphasized benefits of social or peer support and at an institutional level, they stressed the need for education to be at the patient’s level of health literacy and for shared-decision making in disease management.
Funding
- NIDDK Support