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Abstract: SA-PO820

Factors Enabling Transplant Program Participation in the Scientific Registry of Transplant Recipients (SRTR) Living Donor Collective: A National Survey

Session Information

Category: Transplantation

  • 2002 Transplantation: Clinical

Authors

  • Lentine, Krista L., Saint Louis University School of Medicine, Saint Louis, Missouri, United States
  • Dew, Mary amanda, University of Pittsburgh, Pittsburgh, Pennsylvania, United States
  • Wisniewski, Addie, Saint Louis University School of Medicine, Saint Louis, Missouri, United States
  • Henderson, Macey L., New York University, New York, New York, United States
  • Al Ammary, Fawaz, Johns Hopkins University, Baltimore, Maryland, United States
  • Sharfuddin, Asif A., University of Indiana, Indianapolis, Indiana, United States
  • Kasiske, Bertram L., Hennepin Healthcare, Minneapolis, Minnesota, United States
Background

The Scientific Registry of Transplant Recipients (SRTR) Living Donor Collective (LDC), the first effort to create a lifetime registry for living donor candidates in the United States, requires transplant centers to register candidates while the SRTR conducts follow-up

Methods

To better understand facilitators and barriers to program participation, we conducted a brief electronic survey of U.S. transplant program staff (10/26/2021–12/17/2021).

Results

We received 132 responses, with at least one response from 87 living donor programs (46 kidney programs, 33 kidney and liver programs, and 8 liver programs alone). We found 86% of program representatives strongly agreed or agreed that funding adequate to cover the cost of data collection would facilitate LDC participation, 92% agreed or strongly agreed with importance of electronic data submission options, and 74% reported that elimination of requirements to submit duplicative pre-operative information to the Organ Procurement and Transplantation Network (OPTN) would be helpful. Other potentially enabling factors include reduction in duration of OPTN follow-up requirements, ease-of-use, protection from data use for regulation, adequate data security, and equity in data access. Responses did not differ significantly when stratified by program type (Figure), role, volume and follow-up success.

Conclusion

Collaboration and investment to overcome barriers to program LDC participation are vital to generate long-term data on living donation for donor candidates, donors, and patients in need of transplant.