Kidney Week

Abstract: INFO05-SA

NEPHrotic Syndrome from Childhood to Adulthood: Creating a NETwork for Research and Care - the NEPHNET Project

Session Information

• Informational Posters - 3
  November 08, 2025 | Location: Exhibit Hall, Convention Center
  Abstract Time: 10:00 AM - 12:00 PM

Category: Glomerular Diseases

• No subcategory defined

Authors

• Vivarelli, Marina, Ospedale Pediatrico Bambino Gesu IRCCS, Rome, Lazio, Italy

Marina Vivarelli, MD

• Colucci, Manuela, Ospedale Pediatrico Bambino Gesu IRCCS, Rome, Lazio, Italy

Manuela Colucci, PhD

• Giannini, Carolina, Ospedale Pediatrico Bambino Gesu IRCCS, Rome, Lazio, Italy

Carolina Giannini, MD

• Ricci, Giulia, Ospedale Pediatrico Bambino Gesu IRCCS, Rome, Lazio, Italy

Giulia Ricci, RN

• Conversano, Ester, Ospedale Pediatrico Bambino Gesu IRCCS, Rome, Lazio, Italy

Ester Conversano, MD

• Martelli, Giorgio, Ospedale Pediatrico Bambino Gesu IRCCS, Rome, Lazio, Italy

Giorgio Martelli

• Gargiulo, Antonio, Ospedale Pediatrico Bambino Gesu IRCCS, Rome, Lazio, Italy

Antonio Gargiulo, MD

• Angeletti, Andrea, Istituto Giannina Gaslini, Genoa, Liguria, Italy

Andrea Angeletti, MD, PhD

• Caridi, Gianluca, Istituto Giannina Gaslini, Genoa, Liguria, Italy

Gianluca Caridi, MBBS, MBChB

• Grandaliano, Giuseppe, Fondazione Policlinico Universitario Agostino Gemelli IRCCS, Rome, Lazio, Italy

Giuseppe Grandaliano, MD, PhD

• Ambrogio, Martina, Fondazione Policlinico Universitario Agostino Gemelli IRCCS, Rome, Lazio, Italy

Martina Ambrogio, DrMed

• Stallone, Giovanni, Azienda Ospedaliera Universitaria Foggia, Foggia, Apulia, Italy

Giovanni Stallone, MD

• Emma, Francesco, Ospedale Pediatrico Bambino Gesu IRCCS, Rome, Lazio, Italy

Francesco Emma, MD

• Zaza, Gianluigi, Azienda Ospedaliera Universitaria Foggia, Foggia, Apulia, Italy

Gianluigi Zaza, MD, PhD

Group or Team Name

• NEPHNET.

Description

NEPHNET is a multicenter, prospective, observational, non-profit cohort study, aiming at establishing an Italian collaborative network for collecting data and biological samples from pediatric and adult patients affected by glomerulopathies, creating an integrated platform for reproducible clinical and research studies (Figure 1). The network includes four hub centers: for pediatric patients, Bambino Gesù Children’s Hospital-IRCCS and IRCCS-Istituto Giannina Gaslini; for adult patients, Fondazione Policlinico Gemelli and Policlinico Riuniti di Foggia. Clinical data are currently being collected in pseudonymized form using the REDCap platform as a disease registry, and biological samples are being gathered longitudinally in an integrated biobank (Table 1).
The effectiveness of this approach in creating an integrated platform will be validated through ongoing pilot studies aimed at identifying multifactorial prognostic biological models.

Figure 1. Design of the NEPHNET Study.

Table 1. Enrolled patients and collected biological samples.

Funding

• Ministero della Salute - PNRR 2022