Abstract: SA-PO0995
Aligning IgAN Care: Dual-Audience Education Improves Competence but Reveals Persistent Communication Gaps
Session Information
- Educational Research
October 24, 2026 | Location: Exhibit Hall A, Convention Center
Abstract Time: 10:00 AM - 12:00 PM
Category: Educational Research
- 1000 Educational Research
Authors
- Drexel, Carole, Medlive, Needham, Massachusetts, United States
- Coppock, Gaia M., University of Pennsylvania Perelman School of Medicine, Philadelphia, Pennsylvania, United States
- Cheung, Chee Kay, University of Leicester, Leicester, United Kingdom
- Wilson, Eve J., Medlive, Needham, Massachusetts, United States
Background
With rapid advances in IgAN therapies and updated KDIGO guidelines, optimal management increasingly depends on alignment between clinician (HCP) decision-making and patient (Pt) understanding. This study utilized outcomes from a dual-audience educational initiative to identify persistent gaps in HCP-Pt alignment.
Methods
A multicomponent online program targeted HCPs (3-module CME + microlearning) and Pts (3-module education + social media). Outcomes included HCP knowledge and competence changes and intended practice changes; and Pt-reported understanding, confidence, and perceptions of care. Analyses, including analysis of pre-/post-activity survey data (Chi-square; P<0.05), focused on areas of alignment and disconnection.
Results
The CME reached 2,268 HCPs (76% nephrologists), 51% of whom actively treated IgAN. At baseline, ~50% believed current therapies adequately reduced proteinuria, and 46% felt comfortable explaining IgAN causes. Education significantly improved knowledge of proteinuria as a treatment target (36%→51%), hemodynamic/podocyte injury (53%→98%), and new therapies (54%→97%). Intended practice changes included prioritizing earlier diagnoses (58%), optimizing supportive care (37%), and adopting new therapies (31%); however, fewer than 30% planned changes in tailoring treatment to individual patient risk or adopting the latest KDIGO guidelines.
Pt education reached 997 learners ( >62,000 social media views). Only 42% reported that their HCP gave a clear explanation of what causes IgAN at diagnosis. Treatment showed continued reliance on traditional therapies, with limited exposure to newer agents, and fewer than half perceived their disease as well controlled. Post-education, 79% reported enhanced understanding of proteinuria and 69% intended to discuss new therapies with their HCP.
Conclusion
Education improved HCP competence and Pt activation, but gaps persist between clinical intent and Pt experience. Enhanced communication and shared decision-making are needed to align care and optimize outcomes.
Acknowledgment
The education and outcomes analysis described were supported by an educational grant from Travere Therapeutics, Inc.