ASN's Mission

To create a world without kidney diseases, the ASN Alliance for Kidney Health elevates care by educating and informing, driving breakthroughs and innovation, and advocating for policies that create transformative changes in kidney medicine throughout the world.

learn more

Contact ASN

1401 H St, NW, Ste 900, Washington, DC 20005

email@asn-online.org

202-640-4660

The Latest on Twitter

Kidney Week

Abstract: FR-OR097

Easing the Difficult Job of Giving "Bad News": Using a Decision Aid to Match Patient Values to a Dialysis Modality

Session Information

Category: Educational Research

  • 800 Educational Research

Authors

  • Wise, Meg, University of Wisconsin-Madison, Madison, Wisconsin, United States
  • Schatell, Dorian R., Medical Education Institute, Madison, Wisconsin, United States
  • Chewning, Betty, University of Wisconsin-Madison, Madison, Wisconsin, United States
  • Chan, Micah R., University of Wisconsin-Madison, Madison, Wisconsin, United States
  • Ashfaq, Akhtar, Opko Pharmaceuticals, Westbury, New York, United States
Background

Nephrologists say telling patients they need dialysis is the worst part of the job—and patients do not want this "bad news". Yet, little is known about how nephrologists describe the options or tailor information to patients’ values—or whether decision support can make this challenging topic less traumatic and more effective.

Methods

Design: A 2-phase prospective, intervention study of audiorecorded conversations between nephrologists and stage 4-5 non-dialysis CKD patients at 2 WI clinics.
Phase 1: 6 nephrologists and 32 patients; no decision support offered.
Phase 2: 6 nephrologists and 30 patients; patients used an online, values-based decision aid—My Life, My Dialysis Choice (My Life) before the visit and shared the 1-page summary of their values/dialysis preferences with the nephrologist.
Data: Phase 1 vs. Phase 2: conversations for tailoring information to (1) Values, (2) Patients’ surveys for dialysis preference, and (3) Nephrologists’ surveys.

Results

Results
Sample: Nephrologists had a mean age of 40 and 7.5 mean years of practice. Patients’ mean eGFR was 20; mean age was 70; 90% were non-Hispanic white; 73% did not finish college.
Phase 1: The dialysis conversation segment was the most difficult. 0% of nephrologists elicited patients’ values. Nephrologists tailored dialysis information for only the 4 (13%) activated patients who inserted their values; 4 (13%) patients preferred home dialysis. Nephrologists said they wanted a tool to aid the dialysis discussion.
Phase 2: The summary served as a dialysis conversation icebreaker. Nephrologists proactively addressed patients’ values 97% of the time and tailored their modality information accordingly (P<0.001 vs. Phase 1). Nephrologists said it “alleviated the need to give bad news.” 15 (50%) patients preferred home dialysis (P <0.01 vs. Phase 1).

Conclusion

Patient use of My Life (~20 minutes) eased a difficult conversation for both nephrologists and patients, and increased patient preference for home dialysis modalities in this small study.

Conversation Analysis Results
Conversation AnalysisPhase 1: No Decision Aid
n=32
Phase 2: Decision aid
n=30
P value
MD elicited/addressed patients0 (0%)29 (97%)<0.001
Patients inserted their own values4 (13%)0 (0%)<0.001
POST-VISIT PATIENT SURVEY   
Would choose home dialysis4 (13%)15 (50%)<0.01
Undecided about a type of dialysis12 (38%)6 (20%)0.134

Funding

  • Commercial Support