ASN's Mission

To create a world without kidney diseases, the ASN Alliance for Kidney Health elevates care by educating and informing, driving breakthroughs and innovation, and advocating for policies that create transformative changes in kidney medicine throughout the world.

learn more

Contact ASN

1401 H St, NW, Ste 900, Washington, DC 20005


The Latest on Twitter

Kidney Week

Abstract: FR-PO1176

Co-Produced Videos to Improve Knowledge Among Patients and Caregivers with a Kidney Transplant

Session Information

  • Pediatric Nephrology - I
    October 26, 2018 | Location: Exhibit Hall, San Diego Convention Center
    Abstract Time: 10:00 AM - 12:00 PM

Category: Pediatric Nephrology

  • 1600 Pediatric Nephrology


  • Dahale, Devesh S., Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, United States
  • Kamel, Margret, Emory University School of Medicine, Atlanta, Georgia, United States
  • Piebenga, Ansara, Improving Renal Outcomes Collaborative, Cincinnati, Ohio, United States
  • Hooper, David K., Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, United States
  • Winterberg, Pamela D., Emory University School of Medicine, Atlanta, Georgia, United States

Group or Team Name

  • Improving Renal Outcomes Collaborative (IROC)

The Improving Renal Outcomes Collaborative (IROC) is a networked learning health system of 23 pediatric centers committed to improving the health, longevity, and quality of life of children with kidney disease. IROC’s Community Engagement Workgroup (CEW) was established to engage patients and caregivers in co-production to achieve health care goals. In line with IROC’s first aim to improve blood pressure (BP) control in children with kidney transplants, the CEW implemented a project to raise awareness of BP management amongst its members using video content.


CEW members created a list of questions regarding the relevance of BP control to health, accurate BP measurement, and treatment of high BP. They then co-produced 10 short videos of pediatric nephrologists teaching these topics on camera. Videos were distributed to patients and caregivers and multiple-choice questions were used to assess knowledge of topic areas before and after viewing the content. Open-ended questions prompted viewers to describe future behaviors influenced by watching each video. Paired responses were analyzed to determine knowledge of topic areas most improved by the video content. Thematic analysis of free-text responses was used to identify future behaviors.


A total of 23 participants (3 patients, 14 caregivers, 4 healthcare professionals and 2 caregiver/healthcare), viewed a median of 5 (IQR 3-9) videos. Videos had on average 11.4 ± 1.1 viewers who submitted paired pre- and post-video responses. Participants demonstrated the largest improvements in knowledge about the prevalence of high BP after kidney transplant (correct response 7% pre- vs 92% post-video), ideal BP levels (45% vs 100%), and the nutrient focus of the DASH diet (25% vs 100%). Future behaviors stimulated by the content viewing included BP self-monitoring, implementation of lifestyle modification, and desire to have more in-depth conversation with healthcare providers about BP management.


Co-produced videos improved BP knowledge among participants who also appear motivated to engage in self-care and conversations with healthcare providers about lifestyle modifications for BP control. We intend to use the feedback from this pilot to create a patient education program at IROC centers using the Knowledge-Attitude-Behavior (KAB) model.