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Kidney Week

Abstract: PO2383

Knowledge Deficits Are Barriers to Living Donor Kidney Transplantations

Session Information

Category: Transplantation

  • 1901 Transplantation: Basic

Authors

  • Menser, Terri L., Houston Methodist Research Institute, Houston, Texas, United States
  • Hobeika, Mark, Houston Methodist Hospital, Houston, Texas, United States
  • Ibrahim, Hassan N., Houston Methodist Hospital, Houston, Texas, United States
  • Khan, Amna, Texas A&M University System, College Station, Texas, United States
  • Cruz, Bethany, Houston Methodist Hospital, Houston, Texas, United States
  • Yi, Stephanie Grace, Houston Methodist Hospital, Houston, Texas, United States
  • Gaber, Ahmed Osama, Houston Methodist Hospital, Houston, Texas, United States
Background

Living kidney donation is an underutilized treatment, and there is a paucity of educational interventions published in the literature describing efforts at increasing living donor kidney transplantation (LDKT); a systematic review of LDKT interventions documented only fifteen such interventions through 2017.1 Transplant: A Family Journey is a two-hour educational session held prior to preemptive patients’ initial transplant evaluation and includes members of patients’ support network (e.g., significant other, family members, and/ or friends). Participants are encouraged to ask questions throughout the session, and can direct questions to the clinician and/or the speaker(s), typically a kidney recipient and/or a donor, about their experience with and knowledge of the transplant process.

Methods

Staff took verbatim notes of participants’ questions during educational sessions and conducted qualitative thematic analysis on the content of the questions to derive patterns.

Results

There were 7 educational sessions for preemptive patients and their support network between December 2019 and March 2020; 57 patients and 89 family members and/or friends attended these sessions. 126 questions were asked that were classified into six main categories (see Figure 1).

Conclusion

There is still a large degree of confusion about transplantation among patients and their loves ones, specifically concerning LDKT. In addition to lack of familiarity of common terms (i.e., ESRD, preemptive, GFR) and a limited understanding of the waitlist process, patients and family members had questions about differential treatment outcomes. Continued efforts to increase patient understanding of transplantation and to involve their support networks early in the evaluation process are crucial to dispelling living donation misconceptions.

1.Sandal et al. (2019) doi:10.1097/TP.0000000000002715

Figure 1. Main Emerging Themes from Participants' Questions