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Abstract: PO0827

Feasibility and Acceptability of Electronic Patient-Reported Outcome Measures (e-PROMs) Collection and Feedback in Hemodialysis Patients

Session Information

Category: Dialysis

  • 701 Dialysis: Hemodialysis and Frequent Dialysis

Authors

  • Viecelli, Andrea K., Princess Alexandra Hospital, Woolloongabba, Queensland, Australia
  • Duncanson, Emily, Australia and New Zealand Dialysis and Transplant Registry, Adelaide, South Australia, Australia
  • Bennett, Paul N., University of South Australia Division of Health Sciences, Adelaide, South Australia, Australia
  • D'Antoine, Matilda Nelly, Australia and New Zealand Dialysis and Transplant Registry, Adelaide, South Australia, Australia
  • Dansie, Kathryn, Australia and New Zealand Dialysis and Transplant Registry, Adelaide, South Australia, Australia
  • Tong, Allison, The University of Sydney, Sydney, New South Wales, Australia
  • Palmer, Suetonia, University of Otago, Christchurch, New Zealand
  • Jesudason, Shilpa, Royal Adelaide Hospital, Adelaide, South Australia, Australia
  • McDonald, Stephen P., Australia and New Zealand Dialysis and Transplant Registry, Adelaide, South Australia, Australia
  • Morton, Rachael L., NHMRC Clinical Trials Centre, Camperdown, New South Wales, Australia

Group or Team Name

  • SWIFT Investigator Team
Background

The “Symptom monitoring With Feedback Trial” (SWIFT) will assess whether 3-monthly symptom monitoring using the IPOS-Renal questionnaire with feedback to patients and clinicians with evidence-based symptom management recommendations, can improve health-related quality of life for adults on hemodialysis (HD). It is unclear whether regular collection of these data using tablet computers, and provision of symptom scores is acceptable and feasible.

Methods

The SWIFT pilot study collected e-PROMs across 4 Australian HD units for 6 months. We conducted semi-structured interviews and focus groups with 38 participants (13 nephrologists, 16 dialysis nurses, 12 patients on HD) about the uptake and implementation of e-PROMs. Transcripts were analyzed thematically.

Results

We identified four themes: enabling efficient, systematic and multidisciplinary patient-centered care (facilitating communication and holistic care, reliable assessment of change in PROMs, increased flexibility in data capture, and ease and convenience); limited data and options for symptom management (depersonalization of care, perceived inability to intervene, time lag for feedback, and uncertain validity and reliability of survey data); requiring familiarity with technology and processes (embedding e-PROMs collection into routine care, assistance to enhance uptake, clarity about e-PROMs purpose and use, comfort and willingness to use technology, and individualizing data collection); and competing interests and barriers to PROMs data collection (physical limitations encumbering survey completion, low educational attainment and language limitations; fitting in with existing routines, and survey fatigue).

Conclusion

Clinicians and patients support the use of e-PROMs with feedback in HD. Clinician engagement and patient support, reliability of technology, timely symptom feedback, and interventions undertaken to address symptom burden are likely to improve acceptability and impact of symptom monitoring.

Funding

  • Private Foundation Support