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Kidney Week

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Abstract: PO1011

Peritoneal Dialysis Caregiver Scope and Functions: A Systematic Scoping Review

Session Information

  • Peritoneal Dialysis
    November 04, 2021 | Location: On-Demand, Virtual Only
    Abstract Time: 10:00 AM - 12:00 PM

Category: Dialysis

  • 702 Dialysis: Home Dialysis and Peritoneal Dialysis

Authors

  • Nopsopon, Tanawin, Chulalongkorn University Faculty of Medicine, Bangkok, Thailand
  • Chumsri, Chitsanucha, Chulalongkorn University Faculty of Medicine, Bangkok, Thailand
  • Kantagowit, Piyawat, Chulalongkorn University Faculty of Medicine, Bangkok, Thailand
  • Pongpirul, Krit, Chulalongkorn University Faculty of Medicine, Bangkok, Thailand

Group or Team Name

  • Thailand PD Outcomes and Practice Patterns Study (PDOPPS) Steering Committee
Background

Caregivers play important roles in peritoneal dialysis (PD) care. Classifying PD self-care tasks is important for determining the PD caregiver roles. As the scope and functions of PD caregiver in published literature have been inconsistent, we aimed to systematically explore the variations of the term caregiver in high-quality PD studies.

Methods

We performed a systematic search using PubMed, Embase, and CENTRAL for randomized controlled trials and observational studies relevant to a caregiver in ESRD (end-stage renal disease) patients with PD in the English language up to February 20th, 2020. Outcomes were choice of words used in articles for “caregiver,” the definition of “caregiver,” persons defined as caregiver, and detailed functions of caregivers.

Results

Of 2,514 potential studies relevant to a caregiver in ESRD patients with PD, 299 theme-related abstracts were selected for further full-text articles screening against eligibility criteria, and 111 were included in the systematic review (72,101 patients in 34 countries). In terms of word choice, “caregiver(s)” was used in 86.4%, “carer(s)” in 20.7% and other words were used in 13.5% of included studies. Only 8.1% of studies gave the explicit definitions of those words. The most referred person is the parents (40.5%), followed by a spouse (37.8%), other family members (37.8%), children (34.2%), non-relative non-healthcare workers (25.2%), friends (20.7%), and healthcare workers (19.8%). The explanation of functions for each word comprises 41.4%, with the PD-specific functions by 32.4%, instrumental activities of daily living by 9.9%, and basic activities of daily living by 5.4%.

Conclusion

PD caregiver has been broadly defined and vary across studies. PD-specific functions should be used for making the definition of PD caregiver clearer.