Abstract: TH-PO1161
Association of Perceived Information and Knowledge with Pursuit of Live Donor Kidney Transplants (LDKTs) Among African Americans
Session Information
- Transplantation: Clinical - Pretransplant Management
November 07, 2019 | Location: Exhibit Hall, Walter E. Washington Convention Center
Abstract Time: 10:00 AM - 12:00 PM
Category: Transplantation
- 1902 Transplantation: Clinical
Authors
- Cabacungan, Ashley N., Duke University, Durham, North Carolina, United States
- Ellis, Matthew Jay, Duke University, Durham, North Carolina, United States
- Sudan, Debra, Duke University Medical Center, Durham, North Carolina, United States
- Davenport, Clemontina A., Duke University, Durham, North Carolina, United States
- Ephraim, Patti, Johns Hopkins University, Baltimore, Maryland, United States
- Strigo, Tara Smith, Duke University, Durham, North Carolina, United States
- Pounds, Iris, Duke University, Durham, North Carolina, United States
- Alkon, Aviel N., Duke University, Durham, North Carolina, United States
- Mohottige, Dinushika, Duke University, Durham, North Carolina, United States
- DePasquale, Nicole, Duke University School of Medicine, Durham, North Carolina, United States
- Peskoe, Sarah B., Duke University, Durham, North Carolina, United States
- Pendergast, Jane F., Duke University, Durham, North Carolina, United States
- Diamantidis, Clarissa Jonas, Duke University, Durham, North Carolina, United States
- St. Clair Russell, Jennifer, National Kidney Foundation, Washington, District of Columbia, United States
- Boulware, L. Ebony, Duke University, Durham, North Carolina, United States
Background
It is unknown whether African Americans’ (AAs) pursuit of LDKT is related to their perceived information or knowledge about LDKT.
Methods
We conducted a cross-sectional analysis among AA kidney transplant candidates enrolled in the Talking about Living Kidney Donation Support (TALKS) trial. We quantified associations between participants’ perceived sufficiency of LDKT information and knowledge with pursuit of LDKT or the occurrence of live donor inquiries. We asked: “How well informed do you feel you are about live donor kidney transplant?” and “How much knowledge do you feel you have now about live donor kidney transplant?” We characterized pursuit of LDKT by self-reported behaviors reflecting low (no family/friends LDKT discussion, no donor), moderate (family/friends LDKT discussion, no donor) or high (family/friends LDKT discussion and potential donor identified) activation toward LDKT. In adjusted logistic regression models, we quantified the association between perceived sufficiency of LDKT information and knowledge with LDKT activation or live donor inquires.
Results
Among 300 AAs, the mean age was 52 (SD 11), 56% were male, 61% had a greater than high school education, and 50% had below 9th grade-level health literacy. The median time on the waitlist was 292 (IQR 81, 697) days. A total of 117 (39%) felt “very” or “extremely” well informed about LDKT and 114 (38%) reported “a great deal of knowledge” about LDKT. Compared to those less informed, participants who reported feeling “very” or “extremely well” informed had statistically significantly greater odds of having moderate or high LDKT (versus low) activation (OR: 2.71, 95% CI 1.02, 7.17), but there was no difference in live donor inquiries. Greater perceived knowledge was not associated with LDKT activation or live donor inquiries.
Conclusion
Fewer than half of African Americans on the deceased donor kidney waiting list felt well informed or very knowledgeable about LDKT. Efforts to increase African American potential recipients’ perceived LDKT information and knowledge could enhance their access to LDKT.
Funding
- NIDDK Support