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Kidney Week

Abstract: SA-PO780

Patient Engagement in Knowledge Translation: A Collaborative Model for Moving Kidney Health Research into Practice

Session Information

  • CKD: Mechanisms - III
    November 09, 2019 | Location: Exhibit Hall, Walter E. Washington Convention Center
    Abstract Time: 10:00 AM - 12:00 PM

Category: CKD (Non-Dialysis)

  • 2103 CKD (Non-Dialysis): Mechanisms

Authors

  • Beaucage, Mary, Can-SOLVE CKD Network, Vancouver, British Columbia, Canada
  • Allu, Selina, Can-SOLVE CKD Network, Vancouver, British Columbia, Canada
  • Elliott, Meghan J., University of Calgary, Calgary, Alberta, Canada

Group or Team Name

  • Can-SOLVE CKD Network
Background

Effective knowledge translation is the process of moving research evidence into clinical practice. Can-SOLVE CKD is a pan-Canadian patient-oriented kidney research network with an established Knowledge User (KU) and Translation (KT) Committee that includes two patient partners. This committee provides guidance, expertise, and direction for all KT activities undertaken by research projects within the network and ensures KT approaches are patient-centered. This research defines key concepts related to KT, outlines the role of the KU/KT Committee in supporting kidney health research, and highlights the contributions of patient partners on this committee.

Methods

The KU/KT Committee provides core infrastructure support for 18 research projects within the Can-SOLVE CKD Network. Membership includes national representation of patients living with kidney disease, policymakers, health care professionals and researchers with KT expertise. In alignment with our strategic framework, we co-developed two KT reporting templates for research teams to complete, reviewed project KT plans, and discussed our KT assessments among the committee. The committee also provides ongoing support for stakeholder engagement and helps projects tailor their KT strategies for communicating, implementing and sustaining their findings in practice.

Results

As the main stakeholders in health research, there are opportunities for patients to participate in KT. Two patient partners act as full KU/KT committee members and maintain links with the Network’s Patient Council and Indigenous Peoples’ Engagement & Research Council (IPERC). Although all committee members share the responsibility of assessing project KT plans and identifying relevant KT strategies, the patient partners are uniquely positioned to understand real-world implications of the research findings. Continued acknowledgment of the patient voice in KT will help encourage ongoing relevant research, novel approaches to KT, and the translation of evidence into practice.

Conclusion

Our multi-stakeholder KU/KT Committee promotes patient-oriented research supporting the translation of kidney health research into practice. Patients can identify unique KT considerations, provide meaningful feedback to research teams, and encourage the generation and application of relevant research evidence.

Funding

  • Government Support - Non-U.S.