Abstract: SA-PO034
Respectful Engagement of Indigenous Peoples in a Pan-Canadian Kidney Research Network
Session Information
- Educational Research
November 09, 2019 | Location: Exhibit Hall, Walter E. Washington Convention Center
Abstract Time: 10:00 AM - 12:00 PM
Category: Educational Research
- 800 Educational Research
Authors
- Robinson-Settee, Helen, Can-SOLVE CKD Network, Vancouver, British Columbia, Canada
- Settee, Craig, Can-SOLVE CKD Network, Vancouver, British Columbia, Canada
- Settee, Kevin, Can-SOLVE CKD Network, Vancouver, British Columbia, Canada
- Turner, Catherine, Can-SOLVE CKD Network, Vancouver, British Columbia, Canada
- Woods, Cathy, Can-SOLVE CKD Network, Vancouver, British Columbia, Canada
Group or Team Name
- Can-SOLVE CKD Network
Background
Kidney disease has a disproportionate impact on the health of Indigenous communities in Canada. A national strategy to improve kidney health must include meaningful, culturally appropriate engagement with Indigenous peoples. Can-SOLVE CKD Network is a pan-Canadian patient-oriented kidney research initiative that is working to improve the health of all Canadians and bring Indigenous ways of knowing into health research.
Methods
As part of the Can-SOLVE CKD Network, Indigenous patients, caregivers, researchers, and community leaders created an Indigenous Peoples’ Engagement and Research Council (IPERC). IPERC supports collaboration grounded in traditional values and partnerships with Indigenous peoples and communities. IPERC guides Can-SOLVE CKD research projects in respectful engagement of Indigenous communities.
The network has created a training pathway, Wabishki Bizhiko Skaanj (“White Horse” in Anishinaabe), helping researchers and patient partners build respectful partnerships with Indigenous peoples in health research. Participants are encouraged to look, listen, learn, and lead their way along the pathway by examining racial identities, privileges, and biases, as well as participating in interactive learning exercises, facilitated online modules and webinars.
The Wabishki Bizhiko Skaanj learning pathway includes a focus on Indigenous Elders in research. This training aims to create a culturally safe space for researchers, patients, and Elders to come together to gain understanding of a holistic context for scientific observations.
Results
Can-SOLVE CKD and IPERC has created a culturally safe space for Indigenous individuals to participate in all aspects of patient-oriented kidney research. Wabishki Bizhiko Skaanj represents a novel learning platform for Indigenous cultural safety in Canadian health research. By enhancing knowledge, self-awareness and strengthening cultural competency, this learning pathway is enabling all partners in health research to close the gaps in kidney health outcomes between Indigenous and non-Indigenous communities.
Conclusion
The Can-SOLVE CKD Network offers a model for respectful engagement of Indigenous communities in health research. By adopting Indigenous ways and fostering cultural competency, kidney health outcomes and overall wellness for and with Indigenous peoples across Canada will be enhanced.
Funding
- Government Support - Non-U.S.