Abstract: TH-PO274
Patient Driven Video-Educational Tool in ESRD
Session Information
- Hemodialysis and Frequent Dialysis - II
November 07, 2019 | Location: Exhibit Hall, Walter E. Washington Convention Center
Abstract Time: 10:00 AM - 12:00 PM
Category: Dialysis
- 701 Dialysis: Hemodialysis and Frequent Dialysis
Authors
- Motz, R Geoffrey, Univ of Cincinnati, Cincinnati, Ohio, United States
- Boyle, Janet, University of Cincinnati, Cincinnati, Ohio, United States
- Thakar, Charuhas V., University of Cincinnati, Cincinnati, Ohio, United States
Background
Eeach year, of the ~ 110,000 incident incident end stage renal disease (ESRD) patients in the U.S., ~ 46% have not received pre-ESRD nephrology care. Pre-ESRD patient education improves outcomes and quality of life. There are limited options to incorporate patient experience into pre-ESRD education.
Methods
In a large academic program we designed a educational tool comprised of a patient interview video, in a patients-teaching-patients model. A planning committee (trainees, physicians, nurse educator and patient surveys) determined the components of this tool. The open-ended patient interviews focused on domains pertaining to experience with dialysis modality, preparation towards dialysis/transplant, lifestyle changes, and journey of accepting life after ESRD. After obtaining informed consent patients were interviewed for ~ 4 hours, edited by three reviewers into a 50 min video, and viewed by faculty and trainees to obtain provider feedback.
Results
There were 6 patients with ESRD (3 Women; 1 White and 5 Black); [3 hemodialysis (HD), 2 home dialysis (HD and peritoneal dialysis), and 1 transplant recipient]. Patients had varying degrees of pre-ESRD education, and had different journeys prior dialysis; and were eager to share their experiences with their peers. The patient reported themes included: their pre-determined fear of dialysis was misplaced; they appreciated the value of adherence to life-sustaining therapies; adjustment to diet and lifestyle modifications was a big component in accepting ESRD care; and they did not realize the available flexibility of dialysis care which may allow them to travel, continue employment, and maintain quality of life. As for provider feedback, 100% found this video to be a critically important educational tool. A shorter shorter duration and including more discussion on transplantation was recommneded. Interestingly, patients felt that although they preferred a peer-driven educational component, it cannot replace the healthcare professionals education.
Conclusion
We successfully demonstrated that patient experience can be incorporated into a succinct video-based educational tool. Key peer-driven components may allay fears of dialysis, improve adherence to dietary and lifestyle changes, and compliment provider education. Future steps include incorporating this tool prospectively, and assess its effectiveness in pre-ESRD educational programs.
Funding
- Clinical Revenue Support