Abstract: PUB311
Positive Emotions of Caregivers of Children with CKD: A Qualitative Systematic Review
Session Information
Category: Pediatric Nephrology
- 1700 Pediatric Nephrology
Authors
- Ong, Zhi Hao, National University of Singapore, Singapore, Singapore
- Ng, Cheng han, National University of Singapore, Singapore, Singapore
- Bin Mohamad Isa, Muhammad Isyazmi, University of Queensland, Brisbane, Queensland, Australia
- Kiew, Megan, Ngee Ann Polytechnic, Singapore, Singapore
- Tok, Pei Loo, National University Hospital Singapore, Singapore, Singapore
- Ng, Yvonne Pm, National University Hospital Singapore, Singapore, Singapore
Background
Negative emotions such as distress, fear, and anxiety are commonly experienced by caregivers of children with Chronic Kidney Disease (CKD). However, the caregiving process may also bring about positive emotions. This study aims to explore and summarise positive emotions of the caregivers.
Methods
A systematic review was performed using the PRISMA guidelines to identify qualitative research studying experiences of caregivers of children (ages 1 to 18) with CKD. Databases (PubMed, PsycINFO, Embase, Scopus, Cochrane) and grey literature (Google Scholar) were searched for relevant articles. The initial search yielded 17,493 title and abstracts. With an agreed upon selection criteria by the authors, 14 papers were accepted for analysis and were independently coded by 2 authors for Thematic Analysis. Critical Appraisal Skills Programme (CASP) checklist was used for grading quality of papers.
Results
Fourteen studies comprised 386 caregivers of children with CKD. Although most caregivers had experienced various negative emotions, some reported improved relationships with the patient, their families, and other caregivers. Some factors that contributed to this phenomenon include the long periods of time spent together, heavy dependence for emotional support, patient’s appreciation of care provided and teamwork in providing care for the patient. These strengthened bonds can help them better cope with problems faced during caregiving.
Conclusion
To our knowledge, this is the first review focusing on identifying positive emotions of family members caring for children with CKD. Strengthening of familial relationships and with other caregivers can occur in the caregiving process despite the multitude of negative emotions experienced. Healthcare professionals can use the results of this study as a foundation to develop support systems to further strengthen these relationships. Further studies could focus on how these positive emotions aid and influence in the care-taking process.