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Abstract: TH-PO1149

Decision Aid to Inform Patients of Transplant Centers That Transplant Patients Like Them

Session Information

Category: Transplantation

  • 1902 Transplantation: Clinical

Authors

  • Israni, Ajay K., Hennepin Healthcare, Minneapolis, Minnesota, United States
  • Schaffhausen, Cory, Hennepin Healthcare Research Institute, Minneapolis, Minnesota, United States
  • Mckinney, Warren T., Hennepin Healthcare Research Institute, Minneapolis, Minnesota, United States
  • Schladt, David P., Minneapolis Medical Research Foundation, Minneapolis, Minnesota, United States
  • Kasiske, Bertram L., Hennepin Healthcare, Minneapolis, Minnesota, United States
  • Chu, Sauman, University of Minnesota-Twin Cities, St Paul, Minnesota, United States
Background

Patient feedback to the Scientific Registry of Transplant Recipients (SRTR) and Organ Procurement and Transplantation Network (OPTN) indicated interest in tailoring the transplant center search based on patient-specific characteristics such as age, and comorbidities such as body mass index (BMI) (Clin Transplant. 2017; e13125).

Methods

We conducted 20 interviews and 13 focus groups with local kidney transplant candidates and their family members plus 3 focus groups with recipients of kidney transplants recruited nationally (n=89 in total). Participants were shown prototypes of the patient specific search decision aid to evaluate the efficacy of reporting customized search results for identifying transplant centers that treat patients like them. We used this feedback to develop a new website.

Results

A website based decision aid informed subjects about transplant center’s use of high KDPI organs and PHS increased risk organs. It also informed subjects about transplant centers that perform transplants in candidates with age over 70 and other comorbidities such as high BMI. [figure1] [figure2]

Conclusion

Patient-specific information using SRTR data can be provided to patients using an interactive web-based decision tool.

Website Showing Program-Specific Recipient Characteristics with pop-up boxes to better inform patients.

Website Search Results Displaying Overview of Patient-Specific Services

Funding

  • Other U.S. Government Support