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Kidney Week

Abstract: TH-PO329

Patient-Reported Experience Measure of Home Haemodialysis Dialysis at Imperial College Renal and Transplant Centre

Session Information

  • Home Dialysis - I
    November 02, 2023 | Location: Exhibit Hall, Pennsylvania Convention Center
    Abstract Time: 10:00 AM - 12:00 PM

Category: Dialysis

  • 802 Dialysis: Home Dialysis and Peritoneal Dialysis

Authors

  • Shivakumar, Oshini, Imperial College London Institute of Global Health Innovation, London, London, United Kingdom
  • Davenport, Emily, Hammersmith Hospital, London, London, United Kingdom
  • Duncan, Neill D., Hammersmith Hospital, London, London, United Kingdom
  • Cacal, Eden Jeanne, Hammersmith Hospital, London, London, United Kingdom
  • Punzalan, Sally, Hammersmith Hospital, London, London, United Kingdom
  • Coloma, Normandy Lopez, Hammersmith Hospital, London, London, United Kingdom
Background

There is a drive to expand home dialysis in the United Kingdom. Instruments to explore patient reported experience measures (PREM) are vital to identifying barriers to home dialysis. In 2021,Rivera et al developed the first English language instrument which incorporates aspects of service widely recognised as key components of high-quality home dialysis care.

Methods

An observation study of patient experience of home haemodialysis (HHD) in West London Renal and Transplant Centre. In June 2022, with permission from Rivera et al, we approached all patients on HHD with an adapted questionnaire.

Results

29 of 37 patients responded. Table 1 lists demographics. 20 patients had been on HHD for 1 to 5 years, and 4 patients for more than 5 years. One patient had been on HHD for ≤ 3 months, hence excluded in further analysis. 24 patients rated their overall mental or emotional health as either ‘Good’, ‘Very good’ or ‘Excellent’. 9 reported of difficulty doing errands alone,such as visiting a doctor’s office or shopping. 24 patients reported 'Usually' or 'Always' staff spent enough time with them. 21 patients felt the staff were ‘Usually’ or ‘Always’ able to help with problems encountered during HHD. 26 patients felt involved in treatment decision and 27 reported their HHD team made sure their dialysis plan worked for them. All 28 patients reported confidence in caring for their dialysis access and performing their dialysis safely at home.

Conclusion

This is a diverse cohort with bias towards patients with higher educational attainment, functional independence and reduced burden of comorbidities. Approachability of staff, structured guidance and an individualised treatment plan aid sustainability of HHD. To reassess in June 2023, for continuing development.